28/5/2017 – Just realised it’s been over a month since I had the RAI treatment and it’s been over two months since I had my surgery……..to me, it seemed like a decade ago. Perhaps subconsciously I’m trying to put everything behind me as much as I could and dive back into my beloved normal life with people I like to hang out with and things I like to do. However, I’m fully aware that until I’m given a remission result from the doctors I’m not definitely clear from the “C” word, but I’m optimistic. For now I feel normal apart from the numbness from my right ear lobe to the front of my neck (it could be temporary thing or permanent, only time will tell). I don’t get tired that easily anymore (I found shopping therapy DEFINITELY helped). I drive, I cycle, I work, I go to swimming lessons with Effie and I’m loving it.
So let me backdate the missing puzzle from my blog (sorry for being so lazy to update my blog the last month or so!)
24th April 2017 – The day I had my RAI at hospital I felt weak and sick. I asked for the strongest anti-sickness I could have to avoid feeling sick after the treatment.
My room was less clinical and not as prison like as I thought it would be. It is a single room isolated from the rest. I was told not to be in the same room with another adult for the first 24 hours. I was allowed visitor to visit up to 30 minutes after that.I packed my 4 days worth of belongings in a suitcase and some snacks and fruits to keep me going. I didn’t bring my mobile phone, big mistake, I didn’t realise there was no WIFI in my isolated room.
Prior to the treatment, a nurse came in to take my blood pressure reading, it was so low she actually took another three readings before she confirmed it was 85/60. The doctor didn’t seem to be concerned about that, I guess it’s part of the side effect that I have been off med for two weeks. My lunch arrived just when my specialist nurse was talking to me. It consisted of a piece of very dry roasted chicken with some boiled broccoli and sweetcorn. She saw my face and urged me to eat as much as I could to line my stomach before taking the iodine tablet. So I did, the broccoli tasted like it has been boiled since last christmas and I was feeling sick anyway……..
The radioactive iodine tablet came in a tube, the staff handed it the tube to me, asked me to down it with a glass of water and she took my radioactive reading using a geiger counter – my reading was 50. Then she left the room immediately.
This picture was taken straight after I have taken the tablet.
Sorry to disappoint but I didn’t glow in the dark.
Despite having a landline and a free TV and DVD player provided by the hospital, this experience was quite lonely and unbearable at times. The anti sickness didn’t work from day 2 and I was still on low iodine diet til day 4. So I was having all the hypothyroid symptoms plus feeling sick all the time. The hospital food on the left didn’t really help with the sickness. Louis had to bring me some food parcels for me on day 2.
My reading was dropped to 6 on day 4 and I was told that after my scans I could leave the hospital yay! Another good news, I could eat whatever I want from the moment I left there. Yippee~~ Wonton noodles and bubble tea that is then.
However I felt sick the same evening 😦 The below picture was taken the day after I left the hospital. I still felt a bit sick.
It didn’t take long before I felt better again, here is me 3 days after I left the hospital
It helped after having this
So that’s it, from then on, everyday I gained more appetite and energy and do all the normal things I used to do 🙂 Me & my family went to Bordeaux three weeks after my RAI and I can now say that was the best idea! The alarm didn’t go off at the airport either ha, I was told that I might be so radioactive that it might set off the alarm at security so I had to carry a doctor’s note on me just in case! I feel like I shouldn’t moan about this but one of the side effect of taking levothyroxine is that my hair has gone super dry and frizzy. I have tried coconut oil, argan oil and I’m desperate to try anything if anyone can recommend a solution to this I would be grateful!
Thank you for riding this journey with me by reading this blog. Thank you for all the feedback. Thank you for all the kind messages, helps and gifts from my families, friends and colleagues. My in law and sister in law came to help when I was in the hospital, my parents have been here since mid-April and still here helping out with Effie and daily errands, I was staying at my in laws when I was radioactive and I was looked after and fed, I had friends coming to visit me, food parcels delivered and Effie looked after… the list goes on, so MUCH love I was truly overwhelmed and really appreciated all the support I received. You all contributed to my road to recovery, love you all x (In my head, I am recovered so just go along with it!)
Hold on, this is not a goodbye thank you, er, no. I really can’t wait to say “this is it” but I have a hospital appointment on 6/6 to talk about possible next step treatment for me (if, there’s a need for that). So watch this space and wish me good luck!